March 10th is National Women and Girls HIV/AIDS Awareness Day #NWGHAAD

This year, we're taking a moment to consider HIV and pregnancy and that knowledge is power.

During my first pregnancy, in my first OB appointment, I received STD testing. I assumed this meant all STDs, including HIV. However, I learn this wasn’t the case until years later, when I began working at NAP. Nebraska was one of the few opt- in states, meaning that I would have to have ask specifically for an HIV test during my pregnancy, in order to get tested. That blew my mind. I realized I could have unknowingly passed on HIV to my son. And it made me wonder perhaps how many other expecting mothers didn’t realize they were at risk of not knowing their status? My doctor’s office never asked me if I wanted an HIV test. I went my whole pregnancy without knowing my HIV status, and the more I thought about it, that also meant I went my whole sexually active life without knowing my HIV status, because I had never specifically asked for an HIV test.

According to the Centers for Disease Control and Prevention, what does HIV and pregnancy look like today?

• Approximately 8,500 women living with HIV give birth annually (based on an estimate from 2006, the most recent available).
• Between 1994 and 2010, an estimated 21,956 cases of perinatally acquired HIV infections were prevented.
• In 2016, 99 children under the age of 13 received a diagnosis of perinatally acquired HIV.

Rate of Perinatally Acquired HIV Infections by Year of Birth and Mother's Race/Ethnicity
2010-2014

In February 2018, the Nebraska legislature passed LB 285, a bill that changed Nebraska from an opt- in state to an opt-out, meaning expecting moms have to ask not to take the test. It is now considered part of routine testing for pregnant women.

I’m now in my second pregnancy and my first OB appointment featured a consent form for an HIV test. It has made me think about the benefits of expanding the Nebraska law to include all health care patients. According to CDC recommendations, “HIV testing and opt-out HIV screening be a part of routine clinical care in all health-care settings while also preserving the patient's option to decline HIV testing and ensuring a provider-patient relationship conducive to optimal clinical and preventive care”. Some people are worried about the ethical implications of being required to take an HIV test. But the point is you don’t have to. You can say no because you are given the choice, rather than never knowing there was a choice to begin with.

What it comes down to is that knowledge is power. Knowing your status is power.

As part of his State of the Union address Tuesday night, President Trump announced a ten-year plan to end HIV as an epidemic in the United States by 2030.

We agree with the President that now is the time to take intentional steps towards ending HIV transmission through tools such as: U=U, PrEP, and rapid treatment for people diagnosed with HIV. However this administration has targeted communities in ways that worsen the U.S. epidemic, including cuts to the Affordable Care Act, budget cuts in HIV research, and attacking the human rights and safety of transgender people.

The four key strategies outlined by Ending the HIV Epidemic: A Plan for America, Diagnose, Treat, Protect, and Respond reflect how far science has advanced in preventing new HIV infections. We are committed to monitor this plan and push for inclusivity in ending the epidemic.

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In Nebraska, we have several current legislative opportunities to advance overall health and wellbeing for our community. While these initiatives do not address HIV directly, these important bills provide protections to the LGBTQ communities, which are disproportionately affected by the HIV epidemic.

LB 167 & LB 168 – Conversion therapy

• Ban advertising and profiting of conversion therapy statewide
  • Conversion therapy means practices or treatments that seek to change an individual’s sexual orientation or gender identity, including efforts to change behaviors or gender expression or to eliminate or reduce sexual or romantic attractions or feelings toward individuals of the same gender.
  • This does not including counseling that provides acceptance, support, and understanding of an individual
• Classify placing a minor in conversion therapy as child abuse

LB 627 – Prohibit Employment Discrimination

• Gender identity and expression and sexual orientation will be protected classes, prohibiting employment discrimination

Nebraska AIDS Project is submitting letters in support of both of these legislative bills.

Both of these bills are scheduled for hearings on Thursday, February 7^th at 1:30 pm with the Judiciary committee.
We urge you to contact your senator and testify in support of these bills.

The conceptualization of World AIDS Day in 1987 can be credited to two World Health Organization (WHO) journalists, Jim Bunn and Thomas Netter, who provided coverage on the AIDS epidemic after HIV was identified in 1984. Both the opportunity to connect with people living with HIV and AIDS and the heavy knowledge that the majority of them passed away soon after being interviewed took an emotional toll on the journalists, but also motivated them to want to do more. In an interview with TIME magazine, Bunn shared that they had been reading excerpts from a speech by WHO general director calling for global mobilization and recounted the specific moment when he said, “‘We need a day!’ We looked at each other … then jumped up out of our chairs and started brainstorming on whiteboards, activities, strategies, the date”. According to Bunn, setting the date was the easy part as December 1^st was the perfect window between U.S. elections and the beginning of the Christmas season. They took their ideas for organization, raising awareness, and messaging to Dr. Johnathan Mann, the director of the Global Program on AIDS and so the first established global health day, World AIDS Day, was launched on December 1^st, 1988. The designated theme was “Communication.” This year marks the 30^th anniversary of World AIDS Day, with the theme “Know Your Status.” It is interesting to note that the themes of each World AIDS Day have tended to reflect significant periods in the work to end the epidemic, challenges encountered in dealing with it, and current events. The national and international events of 2018 have created momentum and opportunities for individuals and communities wanting to be engaged, have a voice, and collectively participate in doing more. According to Dr. Andrew Spieldenner, who writes for POZ, “The biggest gains in the HIV epidemic have been due to community movements.” Informed involvement in any capacity is powerful. The opportunity to show up and contribute meaningfully is empowering. [one_half] On World AIDS Day this year, the theme, “Know Your Status” is relevant to everyone. Normalizing and encouraging the decision to get tested is essential to emphasize and turn into an action step for anyone, regardless of living with HIV or not. You may find yourself asking, “Why should I be tested?” or “How can getting tested make any sort of impact?” By participating in an HIV test, not only do you become more informed, you also can become a powerful voice to speak of your experience to others within your scope of influence. By helping to promote and destigmatize testing, you are able to make an impact on others who might be encouraged to know their status because you are willing to share and engage with them on the topic. According to the UNAIDS Data 2018 report, there were an estimated 36.9 million people with HIV around the world in 2017. For these individuals and their support systems, knowledge and remaining engaged is a powerful way to promote awareness within their scope of influence. According to the CDC, people living with HIV who maintain an undetectable viral load cannot transmit HIV. Medication adherence and engagement in medical care are key ways that people living with HIV can know their status, celebrate that undetectable = untransmittable (U=U), and “affirm that in 2018 living with HIV does not prevent them from loving, contributing and creating a greater world for future generations.” Each year, regardless of the designated theme or current events, World AIDS Day is an opportunity to remember the past and honor the memory of those who we have lost to HIV, shed light on the stigma that surrounds HIV, call for awareness and education, and support those currently living with HIV. In an interview with NPR, Bunn said, “The fact that there's conversation occurs on an annual basis on World AIDS Day is significant.” Having a designated day will always be necessary to intentionally create a space for mindful acknowledgement, collective remembrance, and strength that only comes from feeling united with others towards a cause that is bigger than ourselves. This year’s call to action centers on the power and accessibility of knowledge. Knowing your status and engaging with others on this topic to the extent that you feel comfortable is helpful. This World AIDS Day, make it a point to talk to someone in your life about the importance of testing, being informed, and engaging in care so that the collective knowledge we share can unite us in our mission toward a future that is HIV and AIDS free. [/one_half] [one_half last="yes"] [/one_half] [ss_gap height="30"]

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Nebraska AIDS Project is proud to participate in the following World AIDS Day events in communities across the state of Nebraska:

OMAHA CANCELLED due to weather. Saturday, December 1st, 7:00 pm; World AIDS Day service at First Unitarian Church (3114 Harney Street), a portion of the AIDS Memorial Quilt will be on display Saturday, December 1st, 1:00-3:00 pm; Day With(out) Art at The Union for Contemporary Art (2423 N 24th Street), HIV testing will be provided 1:00 pm - Screening of Visual AIDS film 1:15 pm - Panel discussion moderated by Dominique Morgan 2:00 pm - Introduction to Black & Pink and card signing party LINCOLN POSTPONED due to weather, new date Saturday, December 15th, 4:30-6:30pm World AIDS Day Celebration and Remembrance at the Salvation Army (2625 Potter Street), a meal is provided CRETE Thursday, November 29th, 3-6pm Testing on Doane’s Campus NORFOLK Friday, November 30th, 10-2pm. Education at Wayne State College Student Center (1111 Main Street) SCOTTSBLUFF Saturday, December 1st at 6:15pm.  Candlelight memorial, slide show, and call to action at the Hampton Inn (Hwy 26)

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Shaina Adams works for Nebraska AIDS Project in Lincoln, NE. She enjoys yoga, dogs, kombucha, and reading a book at home.

 

Executive Director, Brent Koster chatted with Mike Hogan on "Live & Local" this morning to talk about the important work Nebraska AIDS Project does, and the event of the year, Night of a Thousand Stars!

This year's event is held on Saturday, November 17th, with the theme Hooray for Hollywood. The evening will be filled with cocktails, hors d'oeuvres, silent auction, and raising money for Nebraska AIDS Project.

Listen to the interview here on KIOS, 91.5's website.

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Every year Nebraska AIDS Project recognizes a community member who has gone above and beyond to advocate and education about HIV and AIDS in our community.

The 2018 Shining Star Recipient, Erin Share Fulton has been making a difference in the Omaha community by volunteering as a Certified Testing Counselor with NAP since 2014. Erin believes that by sharing her story, she will be get others #ThinkingTalkingTesting.

Read more about Erin, on the blog here.

To join Honorary Chairs, Rick Clark & Tommy Wolf at the event on Saturday, November 17th, purchase tickets here.  General admission tickets are available until November 17th at noon. Tickets can be purchased at the door.

Nebraska AIDS Project is pleased to announce our 2018 Shining Star Recipient, Erin Shafer Fulton.[ss_gap height="30"]

Every year, Nebraska AIDS Project recognizes a community member who has gone above and beyond to advocate and educate about HIV and AIDS in our community. This year’s Shining Star Award winner is Erin Shafer Fulton. It has been an honor and privilege to know and work with Erin. Her work advocating for HIV testing and prevention has made a huge difference for the Omaha community and, especially, the work in HIV and AIDS.

Nebraska AIDS Project was founded in a time of great uncertainty - at a time when the President refused to even utter the word "AIDS". No one knew how things would play out, but courageous people knew that, in the face of impossible odds, they had to do something. It's because of those people that we have places like NAP today. They made what seemed impossible possible.

[ss_gap height="30"]Erin Shafer Fulton is a passionate person working fiercely to stop the stigma of HIV and AIDS. She is married to her husband Troy of 9 years. Erin is a mother and bonus mom to 4 children, Ashley (17), Charlotte (8), Michael (16) and Kaylee (21). Erin is celebrating living with HIV for 25 years. She believes that adherence to her antiretroviral medication, healthy lifestyle and her positive outlook contribute to her success. Erin graduated from Bellevue West High School after she was diagnosed in 1994. She attended Cape Cod Community College and Metropolitan Community College. Erin has worked as a Financial Advisor since 2007. Erin decided to make a difference in the Omaha community by volunteering as a Certified Testing Counselor at NAP in 2014. Recently, Erin competed as Mrs. Douglas County for Mrs. Nebraska and won the Mrs. Congeniality Award and The Patty Steele Lifetime Achievement Award. Erin believes that by sharing her story she will get others #ThinkingTalkingTesting.

We congratulate Erin in all of her hard work to help end HIV/AIDS and we look forward to formally recognizing her efforts at Night of A Thousand Stars – Hooray for Hollywood on November 17, 2018.  Purchase tickets here.

Volunteers are still needed for Night of A Thousand Stars. We are looking for volunteers for set-up, tear-down, and during the event. And, all volunteers will receive 1 General Admission Ticket to the event! To volunteer, please fill out the Volunteer Registration Form. If you have any questions about volunteering, please contact Mitch at 402-552-9260 x 116.

The Nebraska AIDS Project (NAP) is proud to welcome Brent Koster into the role of Executive Director for the organization. Koster fills a role recently vacated by the departure of Interim Executive Director, London Woolman. Koster brings more than 15 years of non-profit experience to NAP, including more than 13 years with Goodwill Industries, Inc., in Omaha, Nebraska. He most recently served as the Vice President of Mission Advancement. He also has five years of case management experience that positions him well to understand and advance the many services NAP staff provides to clients across Nebraska, southwest Iowa and beyond. “The Nebraska AIDS Project Board is pleased that Brent Koster has accepted this new challenge at a time when NAP is in the process of implementing a new strategic plan,” said Jason Coleman, PhD, President of the Nebraska AIDS Project Board and Director of the School of Health and Kinesiology at the University of Nebraska at Omaha. “His long-time experiences in the non-profit world makes him well suited for this role with NAP.” “I am excited to be with an organization that I can really believe in and help support the mission,” Koster said. “This is a critical juncture for NAP as we try to advance the strategic plan the board and leadership developed. In addition, our major annual event, Night of a Thousand Stars, is coming up and it’s going to build upon the success and excitement of last year, so we’re in full planning for that.” Koster has been in Omaha since 2003, relocating from Seattle, and is a member of the Nonprofit Association of the Midlands 2018 Executive Institute. He and his wife, Chelsey, have two daughters. The family is passionate about involvement in the community, with Chelsey being a past volunteer with NAP. Dr. Coleman added, “The board is grateful to London for her years of service and dedication to our mission, clients and the NAP team, especially during this transition. We wish London the best in her next chapter.” Koster began his role as executive director on Tuesday, Aug. 14.